From a Veteran’s Unmet Need to Federal Legislation
Last updated: March 27, 2026
Every veterans benefit that exists today — every presumptive condition, every education program, every disability payment — started the same way: someone identified a need, gathered the evidence, and fought to turn it into law. The process is long, often frustrating, and rarely straightforward. But it works. And understanding how it works is the first step toward making it work better.
This page explains that process: how a veteran’s unmet need becomes a federal law, who is involved at each stage, and how anyone — veteran, family member, or concerned citizen — can participate. We use the PACT Act as a case study because it illustrates every stage of the process, from grassroots advocacy to peer-reviewed science to a signed law.
Veterans benefits don’t appear on their own. They are the product of sustained effort by a network of advocates, researchers, and institutions working on behalf of those who served. These are the principal actors.
Veterans Service Organizations (VSOs). Groups like the American Legion, Veterans of Foreign Wars (VFW), Disabled American Veterans (DAV), Paralyzed Veterans of America (PVA), Iraq and Afghanistan Veterans of America (IAVA), and dozens of others serve as the organized voice of the veteran community. VSOs testify before Congress, draft proposed legislation, lobby for funding, and provide free claims assistance to individual veterans. Many of the benefits you use today exist because a VSO identified the gap and pushed for the fix — sometimes for years or decades. VSO Guide →
Grassroots advocacy organizations. Some of the most powerful advocacy comes from organizations founded by veterans and families who experienced the problem firsthand. Burn Pits 360, founded by Rosie Torres after her husband SFC Le Roy Torres returned from Iraq with toxic exposure injuries, became the public face of the burn pit fight long before Congress acted. These organizations collect stories, build registries, raise public awareness, and create the political pressure that makes legislation possible.
Medical researchers and scientific institutions. Congress does not create presumptive conditions based on anecdote alone. The scientific foundation matters. The National Academies of Sciences, Engineering, and Medicine (NASEM) conducts independent reviews of the medical literature at the request of the VA and Congress. Their reports evaluate whether a given exposure — Agent Orange, burn pits, radiation — has a positive association with specific diseases. These findings directly inform which conditions become presumptive. The VA’s own research programs, university studies published in peer-reviewed journals, and DoD health surveillance data all contribute to the evidentiary base.
Congressional committees. Two committees hold primary jurisdiction over veterans legislation: the House Committee on Veterans’ Affairs (HVAC) and the Senate Committee on Veterans’ Affairs (SVAC). These committees hold hearings, receive testimony from veterans and their families, review scientific evidence, and draft the bills that become law. Subcommittees on Health, Economic Opportunity, and Disability Assistance handle specific policy areas. Members of these committees — from both parties — have historically worked together on veterans issues, which is one reason veterans legislation has a stronger bipartisan track record than most policy areas.
The Department of Veterans Affairs. The VA itself plays a role in shaping legislation. It provides data on claims volume, healthcare costs, and service-connected conditions. It also has the authority to establish new presumptive conditions through rulemaking (without new legislation) when the scientific evidence supports it — as it did when it added hypertension and MGUS to the Agent Orange presumptive list in 2022 and 2025 respectively.
Veteran families and survivors. Some of the most compelling testimony before Congress comes not from organizations or researchers, but from families. Danielle Robinson, the widow of SFC Heath Robinson — the soldier for whom the PACT Act is named — testified before Congress about watching her husband develop a rare lung cancer after returning from Iraq. Her testimony, and the testimony of hundreds of families like hers, made the human cost impossible to ignore.
Public advocates. Individuals outside the military community can play an outsized role. Jon Stewart’s sustained advocacy for burn pit legislation brought national media attention to an issue that had struggled for years to gain traction. His testimony before congressional committees and public appearances did not create the science or the policy — but they created the public awareness that accelerated the timeline.
The path from an identified problem to a signed law follows a general pattern, though the timeline varies enormously — from years to decades.
The Sergeant First Class Heath Robinson Honoring Our Promise to Address Comprehensive Toxics Act — the PACT Act — is the largest expansion of veterans’ toxic exposure benefits since the Agent Orange Act. Signed into law on August 10, 2022, it added more than 20 presumptive conditions, expanded healthcare eligibility for millions of veterans, and funded new research and treatment programs. Here is how it happened.
The problem (2001–2010s). During operations in Iraq and Afghanistan, the military used open-air burn pits to dispose of waste — plastics, chemicals, medical waste, munitions, batteries, and more — at hundreds of bases. Some pits burned continuously for years. An estimated 85 percent of deployed personnel served at bases with active burn pits. Veterans began reporting respiratory illness, rare cancers, and other conditions after returning home. The VA initially denied most claims, citing insufficient evidence linking specific diseases to burn pit exposure.
The science. The evidentiary foundation built over more than a decade:
The advocacy. Burn Pits 360, founded by Rosie Torres, built an independent registry, organized veterans and families, and brought sustained public attention to the issue. IAVA, VFW, DAV, the American Legion, and other VSOs pushed for legislative action. Families of veterans who died from burn pit–related illness testified before Congress. Jon Stewart’s public advocacy, including testimony before the Senate Committee on Veterans’ Affairs, brought national media coverage to the issue at critical moments in the legislative process.
The legislation. Multiple bills were introduced over several congressional sessions. The version that became law — H.R. 3967 — was introduced in the 117th Congress. It passed the House, passed the Senate (with a procedural delay that generated significant public pressure), and was signed into law on August 10, 2022. The final vote was 86–11 in the Senate and 342–88 in the House, reflecting broad bipartisan support.
The result. The PACT Act created over 20 new presumptive conditions for burn pit and toxic exposure, expanded Agent Orange and radiation presumptives, extended combat veteran healthcare eligibility, required toxic exposure screenings for all enrolled veterans, funded 31 new VA facilities, established an interagency research working group, and created the Veterans Toxic Exposures Fund to ensure long-term funding. In its first year, the VA completed over 458,000 PACT Act–related claims and delivered more than $1.85 billion in benefits to veterans and survivors.
The legislative process is not closed. Anyone — veteran, family member, or citizen — can participate. Here is how.
Know what your representatives are working on. The House and Senate Veterans’ Affairs Committees publish hearing schedules, witness lists, and proposed legislation. Committee hearings are publicly streamed. Knowing what’s being debated is the first step toward participating in it.
Contact your members of Congress. Congressional offices track constituent contacts. A phone call, email, or letter about a specific bill or issue is logged and reported to the member. Volume matters — when a congressional office receives hundreds of contacts on the same issue, it gets attention. Be specific: name the bill number if one exists, describe the problem, and explain why it matters to you personally.
Join or support a VSO. VSOs like the American Legion, VFW, DAV, IAVA, and others are the organized mechanism for collective advocacy. Membership gives your voice institutional weight. Many VSOs also offer free claims assistance, community events, and legislative tracking tools. VSO Guide →
Testify or submit written statements. Congressional committees accept written testimony from the public. If you have direct experience with the issue being considered — as a veteran, caregiver, family member, or researcher — your statement can become part of the official record.
Participate in research. Enroll in the VA’s Airborne Hazards and Open Burn Pit Registry or the Agent Orange Registry. Participate in VA research studies. The larger the dataset, the stronger the scientific foundation for future legislation.
Share information. One of the most common barriers to veterans receiving benefits is simply not knowing they exist. Sharing tools like the Presumptive Conditions Lookup or the Military Campaigns & Benefits Guide with a veteran in your life is advocacy in its simplest and most immediate form.
The Agent Orange presumptive list took decades to build. Vietnam veterans fought for recognition of herbicide-related illness for more than 20 years before the Agent Orange Act of 1991 codified the first presumptives. Even after that law passed, conditions continued to be added — hypertension was not added until 2022, more than 50 years after the last troops left Vietnam.
The PACT Act took 15 years from the first veteran reports of burn pit illness to a signed law. That timeline was compressed — compared to Agent Orange — because the advocacy infrastructure had matured, the scientific tools had improved, and the precedent for toxic exposure legislation already existed.
Future benefits will follow the same pattern: a veteran identifies a need, researchers build the evidence, advocates push for action, and Congress writes the law. The question is never whether the process works. The question is how long it takes — and that depends, in part, on whether people participate.